State Legislation

State Privacy Regulators Announce Formation of Collaboratory Consortium

On April 16, 2025, the California Privacy Protection Agency (CPPA) and state Attorneys General from California, Colorado, Connecticut, Delaware, Indiana, New Jersey, and Oregon announced the formation of the bipartisan "Consortium of Privacy Regulators." The focus of the Consortium will be to foster multi-state coordination, including sharing of expertise and resources, in investigation of potential violations of and enforcement of their state's respective comprehensive privacy laws. 

The press release quotes Michael Macko, the CPPA’s head of enforcement, observing that CPPA officials have “seen firsthand how misuse of data can harm Californians, whether it's information about their health, location, kids, identity, and more.” This suggests that sensitive personal information — including health information, kids’ data, and precise location data, which have taken center stage for new privacy laws and enforcement in recent years — is likely to be a priority for the Consortium. 

While state privacy law enforcers have been open about engaging in informal information-sharing for years and some have even coordinated multi-state settlement negotiations, the formation of the Consortium marks the first formalization of such collaboration in the privacy context and may signal a potential uptick of multistate privacy enforcement action. This possibility is significant for businesses, whose potential liability may increase in the context of more coordinated lawsuits and settlement negotiations brought under the comprehensive privacy laws of multiple states. In the past, coordinated efforts among state enforcers have tended to yield high combined settlement amounts

State enforcement collaboration may also be intended to address a commonly cited concern with state level privacy enforcement: that State Attorney Generals offices lack resources to engage in robust investigation into data collection and use practices. Such collaboration could indicate that state enforcement authorities are gearing up to increase their privacy-related enforcement activity in response to a perceived de-prioritization of privacy issues at the federal level, including at the Federal Trade Commission

Notably, Texas — which has emerged as one of the most active state privacy regulators — is not a Consortium member. 

Hintze Law PLLC is a Chambers-ranked and Legal 500-recognized, boutique law firm that provides counseling exclusively on global privacy, data security, and AI law. Its attorneys and data consultants support technology, ecommerce, advertising, media, retail, healthcare, and mobile companies, organizations, and industry associations in all aspects of privacy, data security, and AI law.

Felicity Slater is an Associate at Hintze Law PLLC representing companies on AI, privacy, and cybersecurity issues.

Susan Hintze is Co-Managing Partner at Hintze Law PLLC. Recognized by Chambers, Legal 500, & Best Lawyers, Susan and her firm are leaders in their field. Susan serves on the International Association of Privacy Professionals (IAPP) Board of Directors and is an IAPP Westin Emeritus Fellow. She is also co-chair of the firm’s Regulatory Defense Group.

Virginia Governor Signs Reproductive Health Data Restrictions into Law

Virginia Governor Signs Reproductive Health Data Restrictions into Law

by Cameron Cantrell and Felicity Slater 

On March 24, 2025, Governor Youngkin (R) of Virginia signed SB 754—which amends the Virginia Consumer Protection Act (VCPA) to restrict the collection and processing of “reproductive or sexual health information” and is enforceable through a private right of action—into law. The law will take effect July 1, 2025. 

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night

Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night

By Felicity Slater and Kate Black

The Maryland Online Data Privacy Act (“MODPA” or the “Act”), which takes effect October 1, 2025, establishes a set of novel requirements that will have a particular impact for companies operating in the health and wellness sectors. 

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

New York Legislature Passes Extraordinarily Restrictive Health Data Privacy Bill

New York Legislature Passes Extraordinarily Restrictive Health Data Privacy Bill

By Mike Hintze and Felicity Slater

Last year, we wrote about a proposed New York State law that would have significant impacts for entities that process health and wellness related data. That bill failed to pass before the 2024 legislative session ended. But today, in the early days of the 2025 session, the New York State legislature has passed Senate Bill S929 (SB S929), which is essentially unchanged from last year’s bill.  

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

10 areas for US-based privacy programs to focus in 2025

10 areas for US-based privacy programs to focus in 2025

By Sam Castic

The post below was originally published by the IAPP at https://iapp.org/news/a/10-areas-for-privacy-programs-to-focus-in-2025.

This past year was another jammed one for privacy teams and it was not easy to stay on top of all the privacy litigation, enforcement trends, and new laws and regulations in the U.S.

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In ‘Holy Redeemer’ Settlement Agreement, OCR Continues to Prioritize Privacy Protections for Reproductive Health Information

In ‘Holy Redeemer’ Settlement Agreement, OCR Continues to Prioritize Privacy Protections for Reproductive Health Information

by Felicity Slater and Kate Black

On November 26, 2024, the Office of Civil Rights (OCR) at the U.S. Department of Health and Human Services (HHS) announced a resolution agreement and corrective plan with Pennsylvania’s Holy Redeemer Hospital (Holy Redeemer). The agreement settles OCR’s claim that Holy Redeemer disclosed a patient’s protected health information (PHI)—including intimate reproductive health details—without a permissible purpose or valid authorization from the patient in violation of the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule

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California Legislature Passes the Delete Act

By Taylor Widawski

On September 15, 2023, the California Legislature passed Senate Bill 362, known as the Delete Act, which amends the California data broker law. The bill now awaits a signature from the governor. If signed, certain aspects of the law will go into effect as soon as January 31, 2024.

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

Washington My Health My Data Act - Part 8: Notice Obligations

By Mike Hintze

When it comes into effect, the Washington My Health My Data Act (MHMDA or the Act) will impose new privacy notice obligations on regulated entities. The Act requires specific privacy disclosures relating to data that meets the very broad definition of “consumer health data.” It appears to require regulated entities to draft, post, link to, and maintain a separate “Consumer Health Data Privacy Policy” that will be largely, but not entirely, redundant of their existing privacy statement(s).

Because the Consumer Health Data Privacy Policy will be publicly available and easily scrutinized by plaintiffs’ lawyers and the Washington Attorney General, mistakes implementing this obligation are likely to be a key source of costly and disruptive litigation. Regulated entities will therefore need to take great care in meeting the Act’s notice requirements which are, in some respects, unusual and unexpected. 

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

Washington My Health My Data Act – Part 7: Biometric Data

By Mike Hintze & Jevan Hutson

Biometric data is among the broad range of “consumer health data” regulated by the Washington My Health My Data Act (MHMDA). In light of MHMDA’s broad definition of biometric data, GDPR-level consent requirements, new obligations, and private right of action, the Act dramatically changes and complicates the regulation of biometric data in Washington state and is poised to become the most disruptive change in U.S. biometric privacy law since Illinois’ BIPA.

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

Washington My Health My Data Act - Part 6: Data Subject Rights

By Mike Hintze

The Washington My Health My Data Act provides consumers with several rights, including a right of access, a right to delete, a right to withdraw consent, and a right to not be discriminated against for exercising their rights. While each of these rights can be found in other privacy laws and so, at a high level, do not seem particularly surprising here, the ways they are included in this Act are unique, create uncertainty, and in some cases go well beyond what exists in any other privacy law.  As a result, regulated entities seeking to comply with them will face difficult, costly, and disruptive implementation challenges (and with respect to the deletion right, the potential for catch-22 situations where full legal compliance may be impossible). These challenges, along with the Act’s private right of action, set up a significant risk of expensive legal claims and litigation.

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

Washington My Health My Data Act - Part 5: Consent Requirements

By Mike Hintze

When it comes into effect, the Washington My Health My Data Act will impose strict consent requirements on a wide range of common data collection and processing activities. In essence, the Act requires affirmative (opt-in) consent for any collection, use, disclosure, or other processing of consumer health data beyond what is necessary to provide a consumer-requested product or service. For anything that could be considered a data “sale,” the authorization requirements are so onerous and risky that they, in effect, create a prohibition.

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

Washington My Health My Data Act - Part 4: Effective Dates

By Mike Hintze

Yesterday the amended Senate version of the Washington My Health My Data Act was approved by the Washington State Legislature. Now that it is a near certainty the Act will become law in its current form, entities subject to the Act need to start preparing to comply. The key factor in determining deadlines for having compliance measures in place is the effective date of the Act. The Act purports to come into effect on March 31, 2024 (and for small businesses, three months later on June 30, 2024). However, contrary to stated legislative intent, and due to what one can only conclude is, at least in part, a drafting error, some of the key substantive provisions of the Act may come into effect much sooner than expected - as soon as July 2023. 

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

Washington My Health My Data Act - Part 3: The Scope of Entities and Consumers Captured by the Act

By Mike Hintze

The Washington My Health My Data Act applies to “regulated entities” that collect or process “consumer health information” from “consumers.” Part two of this series addressed the definition of “consumer health data” and how that definition results in a scope of applicability that is far beyond what we might typically think of as sensitive health data. But the other two above-quoted defined terms – “regulated entity” and “consumer” also result in a very broad (and in some ways surprising) scope and impact. 

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

Washington My Health My Data Act - Part 2: The Scope of “Consumer Health Data”

By Mike Hintze

The substantive requirements of the Washington My Health My Data Act apply to collection, use, and disclosure of “consumer health data.” While there are a few important exclusions, the stunning breath of that term's definition, means that it will be difficult to safely conclude that any category of personal data is out of scope of the Act. As a result, it is inaccurate to refer to the Washington My Health My Data Act as a “health data privacy law.” On the contrary, it is, in effect, a generally-applicable privacy law. 

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

The Washington My Health My Data Act - Part 1: An Overview

By Mike Hintze

The Washington My Health My Data Act will become the most consequential privacy legislation enacted in 2023. The sweeping scope and extreme substantive obligations, combined with vague terms and with a full private right of action, make this Act extraordinarily challenging and risky for entities seeking to comply with its requirements.

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

Utah's Social Media Regulation Act - Overview of Privacy & Business Impact

By Alex Schlight and Leslie Veloz

Just a year after passing a comprehensive privacy law, Utah becomes the first state in the United States to pass a law that significantly regulates minors' access to, and use of, social media sites. The law is much broader than kids’ privacy laws like the federal Children’s Online Privacy Protection Act (COPPA), or California’s Age-Appropriate Design Code Act passed last year in that it significantly limits when and how minors under the age of 18 can use social media, gives parent’s broad rights to consent to and access accounts, and places extensive restrictions on social media company activities, including, prohibiting the display of ads to minors, targeting or suggesting groups, services, products, and posts and use of addictive design.

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

Iowa Passes Sixth State Comprehensive Privacy Law

By Sheila Sokolowski

Senate File 262, a comprehensive privacy law, was signed by the Governor of Iowa on March 28, 2023, thereby becoming law. As a result, Iowa has officially become the sixth state with a comprehensive privacy law, joining California, Colorado, Connecticut, Utah, and Virginia.  

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

Hintze Cybersecurity + Breach Response Group Publishes U.S. State Breach Notice Guide

By Sam Castic

The Hintze Cybersecurity + Breach Response Group has published a new guide to U.S. state and territory data breach notification laws – the Hintze Data Breach Notice Guide accessible here.  We include in our guide an overview section with a high-level summary of the common provisions that U.S. breach notice laws contain.  We also provide a set of detailed charts covering each of the 54 states and jurisdictions. We gathered our collective decades of experience working with breaches to organize these charts in a way we think is more usable in the midst of a breach crisis.

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze

What California’s New Age-Appropriate Design Code Means for Your Business

By Charlotte Lunday

On September 15, Governor Gavin Newsom signed into law the California Age-Appropriate Design Code Act (CAADC). The law which received bipartisan support in the Legislature has a goal of protecting the wellbeing, data, and privacy of children, including teens, using online platforms. Businesses will be required to comply with significant new documentation and privacy by design and privacy default obligations by July 1, 2024. These obligations are largely adopted from the United Kingdom’s Age-Appropriate Design Code, and the statute’s preamble points to this law and the UK’s Information Commissioner’s Office (ICO) guidance to interpret the CAADC.

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Don’t Sleep on Maryland: The Maryland Online Data Privacy Act Will Keep Health and Wellness Companies Up at Night — Hintze